Applications (offline)

Applications are currently closed due to the high volume of applicants. Follow our Facebook page for updates on when they will reopen. If you have applied, please refrain from emailing, we will be in touch as soon as we can. 

As ever, if you can afford your own testing (~£300) we recommend doing this, and we are happy to support you through the testing process - just email us on This email address is being protected from spambots. You need JavaScript enabled to view it. .

Our fundraisers

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Current Fundraisers 

Jamie Lucas - running marathons and half-marathons throughout 2015 to raise sponsorship, almost £500 so far

 

Sophie Kellaway - organising and taking part in a Game of Thrones themed 84 mile Hadrian's Wall Walk in September

 

Past Fundraisers

Frances Shroder and her 6 best friends - ran the Regents Park 10k on 9th May 2015 to celebrate Fran's birthday in the most generous way possible, raising over £1100

 

Tracie Pal ran a spectacular barn/line dancing event in the West Midlands, ticket sales, a raffle and donations brought in nearly £250 and raised a lot of awareness without sacrificing the great fun had by all!

 

Links

 

For further information there are several ports of call:

Tick Talk Ireland have a great website full of information about the problems with Lyme diagnosis and testing and the history of it.

Lyme Disease UK have a websitefacebook page and a facebook support group (we would particularly recommend anyone interested in learning more about Lyme or who thinks they may have it, join this group, that's where we all started our journeys!)

Lyme Disease Action have leaflets and other information that you can print out to show your GP to help get them on board with testing and treatment.

Many lyme patients have blogs covering emotional, political and scientific aspects of the disease. These include:

http://campother.blogspot.co.uk/ 

-http://lookingatlyme.blogspot.co.uk/

-http://dddangerous.com/ 

-http://lymeywifey.blogspot.co.uk/

 

You can always contact us too if you need anything related to Lyme Disease testing on  This email address is being protected from spambots. You need JavaScript enabled to view it. .

 

Shop

All profits from items in our shops go directly to LymeAid UK. We have awareness jewellery and clothing and Lyme Disease preventatives!

 

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Buy TickCards on eBay from LymeAid UK for only £3.65.
Tick Cards are a must have for anyone who goes walking or camping in the countryside. For ramblers, birdwatchers, scouts - anyone who may come into contact with ticks. Ticks can carry bacteria which cause Lyme Disease, the quicker the tick is removed the less chance that this will be transferred. It is also important to remove a tick correctly to prevent transmission - if the tick is squashed it will expel the bacteria into your bloodstream which is why the tick card is a perfect removal device. Best of all the tick card is the size of a credit card so it can live in your wallet and you never need to remember to pick it up for walks. It has 2 notches for large and small ticks (or bee-stings, splinters, thorns) and a magnifying glass to check if it is a tick or a splinter that you have picked up.





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Buy LymeAid UK and Lyme Disease awareness bracelets on Etsy for only £3.60.
These handmade bracelets are perfect for raising awareness about Lyme Disease, a pretty new twist on generic rubber awareness bands. They have a selection of green beads, the colour of Lyme Disease awareness, on a wire band with clasp. These are available with 3 text options - "LYME DISEASE", "LYMIE" and our favourite "LYMEAID UK".

Buy LymeAid UK t-shirts directly from us by emailing This email address is being protected from spambots. You need JavaScript enabled to view it. for £15 including shipping
These wonderful 100% cotton t-shirts help raise awareness of Lyme disease and LymeAid UK with an eye-catching design and simple slogan - and of course all profits go directly to the LymeAid UK to help patients get the tests they need.

Buy LymeAid UK awareness ribbons on Ebay for £1.50 including shipping
Lime green branded awareness ribbons are perfect to show your support and care and to get people asking questions about Lyme.

Get a test

 

If you've had an NHS test that was negative, wish to get a private overseas test to further investigate your illness and are able to afford your test without a grant from us but without knowing where to start there are 2 main options.


IGENEX

Igenex is an American specialist Lyme testing lab. Igenex has been accredited by the Centers for Medicare and Medicaid Services (CMS) and in addition, it holds California, New York, Maryland, Pennsylvania and Florida licensure since these States require a separate license to perform testing for patients. 

They have a number of options including testing for other infections that you can receive from a tick bite alongside Lyme. Many of these extra tests can become quite expensive. To get an Igenex test you will need a doctor to take your blood, sign the request form for the tests and receive the results, Igenex will not post results to a patient alone. If you have an open minded GP they may do this, some private doctors will or there are 2 private clinics in England who will see you for Lyme and carry out a test with Igenex at your request, but be aware you will pay for the consult with these as well as the test.


The three options for just Lyme testing with Igenex are:


1. "Basic panel" - a comprehensive IgG and IgM western blot based on additional strains of bacteria to the NHS test together with an IFA - another sort of test to detect antibodies against the lyme bacteria. This costs $260, around £160.


2. "Complete panel" - as above plus a PCR test on the blood, this looks directly for the DNA of the bacteria, it is very specific but rarely positive as you need the bacteria in your blood that is drawn, but can be an appropriate option for people who are not producing antibodies. This is $475, around £300.


3. "Initial panel" - the IgG and IgM western blot as per the basic panel and PCR on blood as per complete panel, but does not include the IFA. This is $410, around £250.


They also offer a CD57 test for $140, £90 which can be useful in judging severity of infection or treatment progress. Furthermore you will need to pay for the cost of shipping the blood with a specialist courier. Further information can be found on Igenex website or by contacting This email address is being protected from spambots. You need JavaScript enabled to view it.

 

ARMINLABS

ArminLabs is a German specialist Lyme testing lab run by Dr Armin Schwarzbach, formerly of Infectolab and the BCA clinic who treat tick-borne diseases. ArminLabs works in association with Gärtner Labs in Ravensburg and so has been accredited by the Deutsche Akkreditierungsstelle GmbH (DAkkS) (German Accreditation Board), all tests are CE-certified for use within the EU.

They also have many test options, including tests for co-infections which are again expensive if a number are carried out. ArminLabs do not require a doctor to sign for the test and will give results directly to the patient and so are an option if you cannot afford to see a private doctor and your GP will not process an Igenex test. You will still require blood to be taken by a phlebotomist or nurse, many GP surgeries or hospitals will offer this for free if you explain the situation.


The options for Lyme tests offered by ArminLabs are:


1. "Acute" - a comprehensive IgG and IgM western blot, similar to that offered by Igenex and an Elispot LTT. The full details on the blot are not available but it seems that this blot compared to Igenex has higher thresholds to be considered positive but uses European bacterial strains instead of just American. The Elispot LTT measures your immune cells' response to Lyme bacteria which can indicate if they have recently been exposed to similar bacteria even without producing antibodies. This is €330, around £240.


2. "Chronic" - as above plus a CD57 test (see note for Igenex). This is €436, around £320.

 

In the UK this lab now go through the Academy of Nutritional Medicine to ensure high levels of patient care. Additionally you are required to pay for the cost of shipping the blood with a private courier. ArminLabs and AONM have a system in place for this with a fixed cost of £30 per order with FedEX. Shipments are arranged through the FedEX and full details of how to do this are given by AONM. For further information or to order a test kit you can look at ArminLabs website: https://www.arminlabs.com/en and also the AONM website: www.aonm.org.
For further information please email This email address is being protected from spambots. You need JavaScript enabled to view it. to order a test kit and discuss your needs.