About Us

 

The primary objective of LymeAid UK is to provide grants to people on low income who suspect they have Lyme Borreliosis for private overseas testing for the disease.

 

A positive Lyme Disease test is the difference for most people between getting treatment on the NHS or not; or being able to successfully fundraise for and obtain private treatment or not. The charity is required as the NHS test is insufficient. No test exists to rule out Lyme Borreliosis but the majority of NHS doctors will not treat based on a clinical diagnosis alone.

 

The NHS relies on 2-tier antibody testing which does not allow for undulatory antibody response, lack of antibody production due to natural variation, variation in performance between different test manufacturers and abrogation of antibody production by immunosuppressants (steroids) or early insufficient antibiotic treatment.

 

Overseas labs have CE marked tests which either do not rely on antibody testing or do more sensitive antibody testing with additional "bands" not included on the NHS tests, giving less chance of a false negative test. Sadly, these tests cost in the region of £500 per person, leaving them out of reach for many people, especially those who have been ill for so many years that they can no longer work.

 

 

 

 

 

LymeAid UK was founded in March 2014 by Sophie, Val and Holly. Sophie has been fully recovered from Lyme since May 2014 after private treatment, Val is her concerned mother and Holly is still recovering but making good progress. We formed the charity after seeing too many stories in support groups of people unable to get help after a negative NHS test.

 

We officially registered with the charity commission (number 1166214) in March 2016, thanks to the help of our supporters.

 

Grants for private tests will be given out by LymeAid UK twice a year to as many people as there are sufficient funds for, with priority being given to people with the highest likelihood of having Lyme disease, with the most severe symptoms, with low or no income and of course people who have already received a negative NHS test.

 

The labs used for testing will be Igenex, USA or ArminLabs, Germany with the choice being left to the patient. ArminLabs has been accredited by the Deutsche Akkreditierungsstelle GmbH (DAkkS) (German Accreditation Board) and gives us a generous 23% discount, Igenex has been accredited by the Centers for Medicare and Medicaid Services (CMS) and holds California, New York, Maryland, Pennsylvania and Florida licensure since these States require a separate license to perform testing for patients.

 

 

 

If you need to contact us for any reason, send an email to  This email address is being protected from spambots. You need JavaScript enabled to view it.